As we close out 2024, we invite you to share our excitement for what lies ahead for our MED13L community. Because of your past support, we have big plans for 2025. Planning for the 2025 Research and Family Conference is nearly complete, and we look forward to welcoming as many of you as possible! More research is urgently needed to better understand MED13L and to search for treatments that will improve the quality of life for all those affected by the syndrome. We reaffirm our commitment to raise as much funds as possible with the aim of funding as much meritorious research as possible. Your support is making all of this (and more) possible!
With 2024 coming to a close and many of you making your final giving decisions, I ask that you keep the MED13L Foundation in mind for one of those gifts. Every donation, no matter the size, makes a difference and helps us collectively build a bigger and stronger community.
Thank you again for your past support, and we wish you and your family a Happy New Year!
P.S. - Did you miss it last month? Our Director of Research, Rachel Heilmann, has co-authored a pivotal article titled "The MED13L Foundation Strategic Research Plan: A Roadmap to the Future," recently published in Therapeutic Advances in Rare Disease.
